Rare Disease Day
People around the world will be observing Rare Disease Day on February 28th. This day of awareness started last year in Europe and quickly spread across the world bringing many countries to get involved for February 28th of 2009. In the United States the National Organization of Rare Disorders) is the main organization putting great focus on the day. Encouraging states to proclaim February 28th as the Rare Disease Day, they have been successful in 5 states. A new organization has become very involved with the Rare Disease Day; The Project, Children’s Rare Disease Network/. Bringing Change for Change to communities all over the country.
SWAN USA will be supporting the Rare Disease Day.
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